About Pulmonary Hypertension Association Australia
Pulmonary Hypertension Association Australia (PHA Australia) launched a webpage in late 2005. It was established by family and friends of Sarah Ann Norton, who lost her life in 2004, 40 hours after giving birth to her son Ethan. It was only after her death that Pulmonary Hypertension was diagnosed.
Meanwhile Annie Whitaker, with her son Tim Walker who was battling the disease, had started a support group and information page with news items, titled Pulmonary Hypertension Australia in late 2001. This group attracted 80 members and was actively supporting each other. In early 2006 the two families found each other on the internet.
Tim, with his computer knowledge, and Annie amalgamated their support group and information pages with the Norton family's sponsored webpage and by amalgamating the two sites created an interactive support group and information platform for those touched by pulmonary hypertension. Tim lost his battle with Pulmonary Hypertension in March 2006.
On the 8th of August, 2008 the website was remodeled with more information and interactive pages. This work took 18 months and was achieved by Annie Whitaker with help from Joan Godber. This current version launched in 2015 has taken several years to complete to keep up to date and compliant with ever changing regulations.
This website site is dedicated to all families living with pulmonary hypertension and those who have lost their battle with this disease.
The mission of Pulmonary Hypertension Australia Incorporated (PHA Australia) is to provide hope, support and education, and to promote awareness and to advocate for the pulmonary hypertension community.
PHA Australia is an incorporated, registered, non profit organisation managed by a committee that is elected every year at the Annual General Meeting. This committee is made up of PH patients, family members and friends.
Our main focus for this website is to provide support, create awareness and pride the latest information and research on Pulmonary Hypertension. We do this by offering members a message board for PH information as well as message forums for friendly conversation and fun. The application process although easy to navigate, must meet the approval of our moderators. This restriction keeps our site private and safe for our members.
PHA Australia brings hope and a better understanding of pulmonary hypertension to many families throughout Australia and the world. Each year brings advances in PH treatment and more answers.
A fabulous gift at any time would be a donation to our site, so we can continue to work at raising awareness of this disease. You can do this by contacting us at firstname.lastname@example.org.
Together we are stronger.